Thank you for contacting me about Cystic Fibrosis.
In recent years, there has been great progress in improving access to precision medicines that can tackle the root causes of Cystic Fibrosis (CF). Since 2019, thousands of people with CF have been able to benefit from licensed treatments being made available through the NHS in England. As a result, I fully recognise the disappointment that many people with CF and their and families will have felt at the initial decision by NICE not to recommend Orkambi, Symkevi and Kaftrio for use in the NHS.
Continued on PDF.